Teen with rare genetic disorder to get new bedroom

Community helps fund changeover

SAN ANTONIO - The parents of a 16 year-old suffering from a rare genetic disorder are saying that their dreams are coming true after the community stepped up to help them build a handicap-accessible bedroom for their teenage daughter.

Alyssa Phillips, 16, was diagnosed with Tuberous Sclerosis last year.

"She just started chemo in January," said Susan Phillips, Alyssa's mother. "It's taken a big toll on her and when we bought our house, we intended her to go up and down the stairs and now that she can't, it's nice to know that everybody is coming together to help us make this dream a reality."

Alyssa suffers from multiple tumors in her brain and her heart. Phillips said it's been hard for her to get around, which is why they were hoping to convert the garage into a bedroom.

Now, thanks to a fundraiser, numerous donations and help from volunteers, the Phillips are one step closer to getting the special bedroom for their daughter.

"It's been such a tremendous success," said Rudy Russo, a volunteer with Brandon Outlaw Wrestling. "It's such a great feeling to know that we can help out Alyssa and the community."

When the work is done, Alyssa will have a handicap accessible room and bathroom, making it easier for her to get in and out.

"Alyssa doesn't have to go up and down the stairs anymore," said Scott Phillips, Alyssa's father. "She can't really walk that well. She has braces on her legs and now she can be downstairs and just walk straight to her room. It's going to be really nice."

Volunteers working on Alyssa's room said they believe the room will be complete in two weeks.


The views expressed are not those of this company or its affiliated companies. Please note by clicking on "Post" you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms.
blog comments powered by Disqus