SA teen with ALS raises awareness of disease
Ice Bucket Challenge to return each August
SAN ANTONIO – Amyotrophic lateral sclerosis, or ALS, is a disorder that affects thousands, on average between the ages of 40 and 70.
The disorder, which affects the function of nerves and muscles, has taken over the lives of 19-year-old Kyron Scott and his family.
Scott was a senior at MacArthur High School when everything changed.
Kyron's mother, Angela Scott, started noticing that his walk was becoming erratic and eventually asked him what was wrong.
"When it started out, it was like a limp in my left leg every now and then," Kyron Scott said.
That limp got worse, and other symptoms started to develop. It took 10 months before doctors diagnosed Kyron with ALS.
"As a parent, you're sort of like trying to prepare for the worst, but hope for the better. But then the worst actually hits and changes everything," Angela Scott said.
Over a year later, Kyron now needs a walker or wheelchair to get around and struggles with everyday tasks.
Angela, a single mother, works 50 hours a week at a restaurant and has often relied on her 6-year-old son to help.
"He'll help me get dressed or make me something to eat. At 6 years old, that's a lot to ask," Kyron said.
Despite all the obstacles that face Kyron, every day he continues to smile and crack jokes.
"I try to find the humor in things," he said.
Around the time Kyron was diagnosed, the Ice Bucket Challenge was spreading across the United States.
Donations totaling $115 million were made last summer, and the ALS Association has created a new campaign called "Every August Until A Cure."
The Ice Bucket Challenge will return every August as a major fundraiser for the organization, and will begin Friday at Fenway Park in Boston.
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