ALS

A California exhibition curated by Hilton Als commemorates Didion’s life and work, with contributions from a variety of notable artists.

A new treatment for ALS was approved by the U.S. Food and Drug Administration two months ago and is about to become available to patients this month. However, there’s a drawback -- the price tag.

A San Antonio woman living with ALS is hoping to shed light on the disease and healthcare disparities she and others face.

If you did the "Ice Bucket Challenge" in 2014, you may have helped fund a new drug for ALS. Some experts are fond of its FDA approval; others less so.

In 2014, it was hard to miss the ALS Ice Bucket Challenge that set out to raise money to fund research for the disease. And it paid off. A new treatment was funded by $2.2 million of the funds raised.

The U.S. government will soon spend $25 million to help patients access experimental drugs for the incurable illness known as Lou Gehrig's disease.

In March, experts who advise the FDA questioned the efficacy of an experimental new drug for ALS. In September, they voted to approve it anyway.

A panel of federal health advisers has voted to recommend approval for an experimental drug to treat Lou Gehrig's disease.

After testing out a new drug for ALS, Juan Reyes set out on a cross country road trip so that he and his high school sweetheart could check off some of their travel bucket list destinations and raise awareness of the disease along the way.

“The work of building a more just society must continue,” he says.

A drug in its early development stages is catching the attention of the ALS community.

The agency should follow its expert panel’s recommendation and wait for the results of a larger clinical study.

Federal health advisers have narrowly ruled against an experimental drug for the debilitating illness known as Lou Gehrig’s disease.

The Food and Drug Administration has issued a negative review of a closely watched experimental drug for the debilitating illness known as Lou Gehrig’s disease.

The Food and Drug Administration meets next week to review a closely watched drug for ALS, or Lou Gehrig’s disease, following months of lobbying by patient groups and congressional lawmakers.

Jane Moody created a writing device for people with dexterity issues when she was still in elementary school.

Brian Wallach has beaten the odds; four years ago, he was diagnosed with amyotrophic lateral sclerosis, and given six months to live. He's used that time to lobby for more research funds for promising drugs to combat ALS, and to make experimental treatments available.

SAN ANTONIO – With so many troubling health concerns during the coronavirus pandemic, UT Health San Antonio has some promising news for those with ALS. Dr. Carlayne Jackson is an ALS specialist and professor of neurology at UT Health San Antonio. Many ALS patients die within two to three years and suffer from a rapid decline in motor function, and currently there are only two other drugs approved by the FDA to treat it. Five of the patients used in the phase two clinical trial were from UT Health San Antonio. One other positive finding according to Jackson is that during Covid-19′s use of telemedicine, the most vulnerable ALS patients managed to remain in better contact with their doctors.

Larry Falivena is spending three months traveling to MLB ballparks in an RV, and his family has joined him. But for Larry Falivena, a husband and father of two, accomplishing that goal is about much more than the game. A nod to "Iron Horse" Lou GehrigIn February, Larry and Shana Falivena met with the CEO of the ALS Association, Calaneet Balas. Gehrig, dubbed the "Iron Horse" for playing 2,130 consecutive games, retired from baseball in 1939 after being diagnosed with ALS. "This mission is more important than being comfortable and safe and protected in our own little bubble in Apex," Shana Falivena said to CNN.

The cartoon creator said his hit Nickelodeon show was born out of his love of the sea.

ALS, also known as Lou Gehrig's disease, robs people of several abilities, including the ability to speak. But now patients are finding a way to make their voices live on. Dr. Jon LaPook has more.

Man with ALS shares joy of tuxedos with Steve Hartman When Chris Rosati, a North Carolina man with ALS, isn't busy spreading acts of kindness he enjoys having a laugh. Watch him show off his love of tuxedos in a fun skit with CBS News' Steve Hartman.

SAN ANTONIO – Hundreds of walkers made their way to San Pedro Springs Park Saturday morning for the Walk to Defeat ALS. There were more than 100 teams at this year's walk, including Judy's Joggers. "We created a team to try and support her to find a cure for ALS," said Mary McKay, with Judy's Joggers. The Walk to Defeat ALS brings in funds for the local chapter to sustain care services and to support research, but it also brings the community together. The Walk to Defeat ALS had been the organization's biggest fundraiser, until this summer's Ice Bucket Challenge.

How will ALS foundation spend Ice Bucket Challenge millions? The ice bucket challenge was one of the most successful charity campaigns raising over $114 million, but is all that money being spent effectively? Michelle Miller reports.

Lawmakers and religious groups ban ALS ice bucket challenge The ALS ice bucket challenge has now raised almost $42 million since late July, up from just $2 million last year. Many of the 740,000 donors have participated in the fun ice challenge, but others have reasons why they can't join the cause. Ben Tracy reports.