‘New You’: Couple embarks on bucket list road trip to raise awareness for ALS
After testing out a new drug for ALS, Juan Reyes set out on a cross country road trip so that he and his high school sweetheart could check off some of their travel bucket list destinations and raise awareness of the disease along the way.
Race to a cure for ALS
Brian Wallach has beaten the odds; four years ago, he was diagnosed with amyotrophic lateral sclerosis, and given six months to live. He's used that time to lobby for more research funds for promising drugs to combat ALS, and to make experimental treatments available.cbsnews.com
Long-awaited new ALS drug shows promise at UT Health San Antonio
SAN ANTONIO – With so many troubling health concerns during the coronavirus pandemic, UT Health San Antonio has some promising news for those with ALS. Dr. Carlayne Jackson is an ALS specialist and professor of neurology at UT Health San Antonio. Many ALS patients die within two to three years and suffer from a rapid decline in motor function, and currently there are only two other drugs approved by the FDA to treat it. Five of the patients used in the phase two clinical trial were from UT Health San Antonio. One other positive finding according to Jackson is that during Covid-19′s use of telemedicine, the most vulnerable ALS patients managed to remain in better contact with their doctors.
Larry Falivena has ALS, and he's visiting all 30 MLB ballparks
Larry Falivena is spending three months traveling to MLB ballparks in an RV, and his family has joined him. But for Larry Falivena, a husband and father of two, accomplishing that goal is about much more than the game. A nod to "Iron Horse" Lou GehrigIn February, Larry and Shana Falivena met with the CEO of the ALS Association, Calaneet Balas. Gehrig, dubbed the "Iron Horse" for playing 2,130 consecutive games, retired from baseball in 1939 after being diagnosed with ALS. "This mission is more important than being comfortable and safe and protected in our own little bubble in Apex," Shana Falivena said to CNN.
Man with ALS shares joy of tuxedos with Steve Hartman
Man with ALS shares joy of tuxedos with Steve Hartman When Chris Rosati, a North Carolina man with ALS, isn't busy spreading acts of kindness he enjoys having a laugh. Watch him show off his love of tuxedos in a fun skit with CBS News' Steve Hartman.cbsnews.com
San Antonio steps out for the Walk to Defeat ALS
SAN ANTONIO – Hundreds of walkers made their way to San Pedro Springs Park Saturday morning for the Walk to Defeat ALS. There were more than 100 teams at this year's walk, including Judy's Joggers. "We created a team to try and support her to find a cure for ALS," said Mary McKay, with Judy's Joggers. The Walk to Defeat ALS brings in funds for the local chapter to sustain care services and to support research, but it also brings the community together. The Walk to Defeat ALS had been the organization's biggest fundraiser, until this summer's Ice Bucket Challenge.
How will ALS foundation spend Ice Bucket Challenge millions?
How will ALS foundation spend Ice Bucket Challenge millions? The ice bucket challenge was one of the most successful charity campaigns raising over $114 million, but is all that money being spent effectively? Michelle Miller reports.cbsnews.com
Lawmakers and religious groups ban ALS ice bucket challenge
Lawmakers and religious groups ban ALS ice bucket challenge The ALS ice bucket challenge has now raised almost $42 million since late July, up from just $2 million last year. Many of the 740,000 donors have participated in the fun ice challenge, but others have reasons why they can't join the cause. Ben Tracy reports.cbsnews.com