SAN ANTONIO ā They dote on each other like any other happily married couple.
āKind of a funny story there. Easy baby, itās okay,ā Jack Triplett said.
āWeāll be together 29 years on Tues... 29 years on Tuesday,ā Laura Triplett added.
After almost three decades of laughter and love for the Tripletts, they tied the knot in Hawaii and always wanted to go back.
Life had other plans.
āBasically, everythingās on hold here. Thatās why the Christmas tree is still standing behind you. Thatās been there since 2019 when she was diagnosed,ā Jack said.
Laura, a vibrant yoga teacher, was diagnosed with ALS, a disease that breaks down your nerve cells impacting the muscles and physical function.
Itās taken her ability to care for herself, even to speak.
āItās been, been quite a long time since Iāve heard her voice. I miss it,ā Jack said.
Forty-nine-year-old Laura can communicate yes or no answers through blinking. Longer sentences come through her eye gaze.
In her words, she shared what living with this disease is like.
āALS patients become prisoners of their failing bodies. For as long as this disease has been known, there should be much more that can be done but our numbers are not as great as other diseases because progression is so fast,ā Laura said.
There are several FDA-approved drugs to help slow the progression of ALS but theyāre costly.
āIāll take anything theyāve got. But realistically, the $125,000, it would take me about a year and a half of just straight salary to make that much money,ā Jack said.
On top of that, Laura needs a caregiver 24/7.
Jack takes care of her when heās not working and her mom cares for her the rest of the time.
But because of qualifying issues, Laura cannot obtain a full-time nurse.
āRealistically, thatās where weāre going to end up. Thereās no provision for that in any insurance that I know of,ā Jack said.
Her other option is hospice care.
āTheyāre going to be keeping her comfortable only. So thatās not really a, thatās not really any kind of life to offer,ā Jack said.
He explained theyāre using a company called Searchlight to help them find a list of resources in one spot.
Laura said her goal is to make it to her 50th birthday next year.